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Resources, part 2

There are over 1,100 rare disorders according to the National Organization for Rare Disorders (NORD). We have limited this set of resources to the more common disorders and the ones with more public awareness. We also include items that have been submitted for the list by the A-SIG Discussion list members. If you find a link that is no longer active or has moved, please notify the Webmasters.

Part 1: Updated Sunday May 04 2008

Accessible Travel Adaptive Technology Aging Allergy and Asthma Alternative Medicine Alzheimer's Disease and Dementia Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease) Aphasia Architectural, Environmental, and Product Design Arthritis Asperger's Syndrome and Autism

Part 2: Updated Sunday May 04 2008

Assisted Living, Clothing, and Rehab Equipment Products Assistive Technology

Part 3: Updated Sunday May 04 2008

Attention Deficit Disorder Behavior and Social Interaction Blood Diseases and Disorders Book Lists Brain Injury Cancer Cerebral Palsy Chromosome 18 Syndrome Chronic Fatigue Syndrome Cognitive Disability Cornelia de Lange Syndrome Cystic Fibrosis Deep Vein Thrombosis Developmental Disabilities Diabetes Disability Etiquette

Part 4: Updated Sunday May 04 2008

Disability Organizations Disability Sites for Children and Families Disaster Resources Down Syndrome Drug/Alcohol Addiction Dwarfism Dyslexia Dystonia Education Emergency Preparedness

Part 5: Updated Sunday May 04 2008

Employment Epilepsy Ergonomics and Musculoskeletal Disorders Facial Difference Fetal Alcohol Syndrome Fibromyalgia Fragile X Syndrome Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy Health Care for Women Hearing Loss Heart Attack and Angina Huntington's Disease Hyperlexia Hypermobility, Ehlers-Danlos, and Marfan Syndrome Internet Accessibility / Usability Invisible Disabilities Klinefelter Syndrome

Part 6: Updated Sunday May 04 2008

Language Learning and Speaking Legal & Human Rights Resources Literacy: Reading and Print Disabilities Literature Lung Diseases Lupus Magazines and Periodicals Medical Links

Part 7: Updated Sunday February 24 2008

Mental Health Mucopolysaccharidoses & Mucolipidoses Multiple Sclerosis Muscular Dystrophy and Ataxia Obsessive-Compulsive Disorder Orthopaedic Information Pain Management Parkinson's Disease Performance Arts / Theater Pervasive Developmental Disorders Phobias Physical Impairment Polio Prader-Willi Syndrome Rehabilitation and Physical Therapy Restless Leg Syndrome Rett Syndrome

Part 8: Updated Sunday May 04 2008

Scoliosis Service Dogs and Therapy Animals Sight / Vision Loss Sjögren's Syndrome Sleep Disorders Spasmodic Torticollis / Dystonia Speech Spina Bifida Spinal Cord Injury Spine and Neck Pain Sports and Recreation Stress Stroke Treatment and Recovery

Part 9: Updated Thursday March 20 2008

Tay-Sachs Disease Technical Communication Thyroid Disorders Tourette Syndrome Traumatic Brain Injury Turner Syndrome Usability and Human Factors Vision Loss William's Syndrome

See also: Suggested Reading book lists.

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Assisted Living, Clothing, and Rehab Equipment Products

• Abilities Expo independent and assisted living products and services
• The Boulevard a disability resource directory of products and services for the physically challenged, elderly, caregivers, and healthcare professionals
• Clothing
  • Backbraces.com surgical supplies
  • Brace Up braces and supports
  • Buck & Buck Designs quality clothing for home health care and nursing home residents
  • Clothing for Nursing Home patients
  • Custom clothing for the physically challenged Garments are made to fit the individual: Children's clothing, Night Gowns, One-piece PJ's & Blanket Sleeper, Dresses and Tops, 'Sitting' Pants, Trousers, Slacks, Elastic Waist Sitting Pants, One Piece Outfits, Hooded Poncho/Cape, Cover-up, Walker & Wheelchair Bags, Underwear, 'Halo Shirts', Lap Robes, Bibs
  • H2O WaterWear water aerobics, exercise, and therapy supplies
  • Therasuit™ and Suit Therapy™ for children with Cerebral Palsy and other neuro-develpomental disorders
• Color Blind Product Resources
• Comfort Bath walk-in tub
• Cookware and Dining
  • Dining with Dignity provides specialty flatware designed specifically for grasp impairment.
  • Doctor Cook supplies an award-winning new saucepan design that eases strain on your wrists and forearms.
• DIMENET "DIMENET is a national computer networking system that is accessible at multiple locations and provides access for communications and information sharing among individuals involved in the disability rights and independent living movements."
• EcoQuest air and water purifier
• Electric and manual wheelchairs and scooters
  • Action Products, Inc. makes wheelchair cushions and seating systems; heel and elbow protectors, and full mattress overlays for Rehab/DME markets
  • Advanced Mobility, Inc. provides an array of mobility equipment and services to both private and government clients in the Baltimore, Maryland, and Washington, D.C., areas
  • Chair and scooter carriers
  • East Coast Rehab, LLC of Alexandria, Virginia custom mobility products: manual, power and sport wheelchairs, as well as custom seating and positioning
  • Electric Mobility Chairs and Scooters
  • Emergency Evacuation and Stair Climbing Chairs and Attachments
  • FDA Approves iBOT™ Stair-Climbing Wheelchair
  • Freedom Concepts
  • iBOT™ 3000 Stair-climbing wheelchair
  • Life on Wheels Center
  • Ms. Wheelchair America
    • Ms. Wheelchair State Programs Alabama, District of Columbia, Florida, Iowa, Kentucky, Maryland, Michigan, New Jersey, Oregon, Pennsylvania, Tennessee, Texas, Virginia
  • Mobility Independent Transportation Systems, Inc. (M.I.T.S.) driving equipment, van conversions, scooters, and power chairs [Mid-Atlantic region]
  • Mobility Outlet
  • Scalamobil wheelchair attachment for climbing stairs
  • Scootaround delivers to cruise ships, conferences, etc.
  • The Scooter Store
  • Towson Medical Equipment Company, Inc. scooters, powered and unpowered wheelchairs, seatlift and recline chairs, stairway elevators and wheelchair lifts, home modifications and grab bar installations, portable and permanent ramps, and medical supplies
  • Wheelcare
  • Wheelchair Guide
  • Wheelchair in a Bag the lightest, most compact travel caretaker wheelchair made of high strength lightweight aircraft aluminum
  • Wheelchair Manufacturer, Invacare Corporation, provides custom manual wheelchairs, IVC manual wheelchairs, power wheelchairs, top end everyday chairs, and high-performance sports and recreation wheelchairs
  • Wheelchair and Scooter Express
  • Wheelchair Medic wheelchair repair technicians and parts to keep you mobile at all times
  • WheelchairNet
  • Wheelchairs & Beach Access
  • Wheels Unlimited
  • Whirlwind Wheelchair International works to make it possible for every person in the developing world who needs a wheelchair to obtain one that will lead to maximum personal independence and integration into society.
• Enabling Technologies sells the Romeo and Juliet braille printers among other items.
• Ergoboard ArmRest helps prevent Carpal Tunnel Syndrome and other Repetitive Strain Injuries
• Esmerel's Keyboard Alternatives and Typing Injury Sites
• Essential Aids [United Kingdom]
• Food and grocery delivery services:
  • Heartland Home Foods [Maryland]
  • Peapod [District of Columbia, Maryland, Virginia, Chicago, Milwaukee, Southeast Wisconsin, Massachusetts, Rhode Island, New York, New Jersey, Western CT, and Northern Westchester County]
  • Safeway [District of Columbia, Maryland, Northern Virginia, San Francisco, Seattle, Phoenix, Portland]
• FlagHouse large-print keyboard with color-coded keys (both Ctrl keys are red, Alt is orange, etc.), therma-wraps, percussion instruments for kids, scooters, head-pointers, and many other assistive equipment
• Humanware computer tools that empower people to compete effectively in a sighted world
• Lifts and ramps:
  • Access Lifts & Service, Inc. providers of all services related to state of the art elevators and lifts for residential as well as commercial use
  • AmRamp® buy or rent low cost modular ramps for wheelchairs, scooters and power chairs
  • SureHands Lift and Care Systems
  • VersaTran Lift, from Blevins Medical, Inc., is designed to aid patients and caregivers who need assistance in the bed-to-lift and lift-to-bed transfer of patients
• Low Tech Tools for People with Learning Disabilities
• Mail, News and Bulletin Boards
• Medical alert jewelry
  • 911 Medical Alert Jewelry
  • American Medical Identifications
  • Medical Identification Jewelry
  • Tinman Medical Identification
• Physical therapy and rehabilitation equipment:
  • Action Products, Inc. makes wheelchair cushions and seating systems; heel and elbow protectors, and full mattress overlays for Rehab/DME markets
  • Buying Guide for Hand Exercisers
  • Chattanooga Group rehabilitation products catalog
  • Functional Solutions rehabilitation supplies
  • GAIAM Wellness Clinic products for healthy living
  • Good Grips Tools by OXO: car cleaning, cooking, gardening, house cleaning, organizing, and spices
  • Hand Exercisers and Grips
  • Healthy Back
  • Invacare Corporation provides home medical products, manufacturing and distributing the world's broadest product offering to approximately 15,000 independent, home medical equipment (HME) providers.
  • IsoFlex hand exercise balls from Thera-Band
  • Medco Sports Medicine rehabilitation supplies
  • Orthopedic Physical Therapy Products (OPTP)
  • PrePack Products, Inc. rehab and fitness products for the home and clinic
  • Pulse Data International makers of the BrailleNote and BrailleNote PK among other items.
  • RC Systems makers of Doubletalk speech synthesizers
  • RS Medical provider of physician-prescribed home electrotherapy devices for muscle stimulation and pain management
  • Sammons Preston rehabilitation supplies
  • Smith+Nephew medical devices and rehabilitation consumer products
  • spinoFLEX fitness and rehabilitation equipment
  • Sportime Abilitations
  • TFH USA cool vision therapy and sensory items
  • TheraTec Quadriciser
  • TheMedSupplyGuide.com provides recommendations for medical supply, equipment, and assistive technology companies. Categories include diabetic supplies, medical equipment, medical supplies, mobility aids, home care, and medical uniforms. "Rankings are determined using a few factors including user feedback...The listings on our site are sponsored but our goal is to provide only the best online suppliers..." The site also includes a FAQ and several forums.
  • The Walking Cane Store
• The Vest Airway Clearance System
• Tools for Life options for using assistive technology
• Unicorn Quest is a typing tutor game for children and adults with one hand or missing fingers (Windows and Mac versions available).

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Assistive Technology

• ABLEDATA
• Access Software Hal, Luna, LunaPlus, Super Nova, and Cicero screen readers and other access software that provides speech and Braille for Windows.
• Active Living Alliance For Canadians with a Disability
• ADA&IT Technical Assistance Centers
• "All Access Pass: enabling technologies offer business possibilities," by Dan Costa, Communications, Home Office Computing, April 2001. (156 K )
  Copyright 2001 Freedom Technology Media Group.
• Alliance for Technology Access Assistive Technology in K-12 Schools
• A Progress Report on Fulfilling America's Promise to Americans with Disabilities The Whitehouse
• Apple® Accessibility
• Apple's Accessibility Technologies
• Apple Assistive Technologies Mac-compatible hardware and software products are designed for those with special needs.
• Apple® Universal Access
• Archimedes Project studies barriers to accessing and using information, computers, and information appliances and identifies and designs innovative solutions, including accessors, that advance universal access to and use of information and control of one's environment. Stanford University
• Arkansas Tech Act Project — the ICAN (Increasing Capabilities Access Network)
• Arizona Technology Access Program (AzTAP)
• Assistivetech.net
• Assistive Mouse Adapter works by filtering out the unintentional movements of the hand caused by a tremor. The effect of the adapter is much smoother movement of the cursor on the screen and greatly improved accuracy of mouse operation.
• Assistive Technology Centre assistive technology shareware and information/resource sites
• Assistive Tech for Students with Mild Disabilities — from The Council for Exceptional Children and Educational Resources Information Center (ERIC)
• Assistive Technologies of Alaska
• Assistive Technology Training Online Project (ATTO) Assistive Technology in K-12 Schools
• Assistive Technology Network expands the accessibility of tools, resources and technology that will help increase independence, improve personal productivity, and enhance the quality of life for all Californians.
• Bright Light Therapy devices to help regulate circadian rhythms and treat Seasonal Affective Disorder (SAD)
  • Blu-Lux™ fill spectrum light boxes, tubes, and neon night lights from Pure n Natural
  • Bluwave™ from Apollo Health
  • Dynatron Light Therapy
  • Full Spectrum Solutions desk and floor lamps
  • Sunbox manufacture and distribute the SunBox, SunSation desktop light, Feel Bright Light Visor, and other bright light therapy devices [Maryland]
• Center on Information Technology Accommodation (CITA) is GSA's IT Accessibility and Workforce (ITAW) provides assistive technology solutions to eliminate barriers for people with disabilities. (US Government)
• Connecting Student Learning & Technology: Building on Technology's Promise; Computers and Constructivism from the Southwest Educational Development Laboratory (SEDL)
• Disability Systems & Software Development
• Dragon™ NaturallySpeaking (Windows platform only)
• EASI — Equal Access to Software and Information
• Empowering Rural Students with Disabilities Through Assistive Technology from the Southwest Educational Development Laboratory (SEDL)
• Freedom Scientific provides blind or vision-impaired computer users access to a wide variety of information, education and job-related applications. Freedom Scientific makes
  • JAWS® for Windows screen reader
  • MAGic
  • OpenBook
  • Connect Outloud
  • WYNN
  • TestTalker
• GW Micro provides computer-based speech products. GW Micro is the maker of Window-Eyes, Vocal-Eyes, speech recognition and speech synthesizer software, and braille printers
• Information Technology and Disabilities
• IBM's Human Ability and Accessibility Center
• Illinois Assistive Technology Program (IATP)
• International Conference: Technology and Persons with Disabilities
• Iowa Program for Assistive Technology — InfoTech
• Kurzweil optical recognition products for Macintosh and Windows platforms
• Lemelson Assistive Technology Development Center (LATDC) E-Team Projects at Hampshire College (Massachusetts). E-Teams are groups of students and faculty who collaborate to invent assistive technology for the disabled. LATDC grants funds to individual students or teams to work on assistive technology or universally designed equipment, research or products.
• Low vision software Ai Squared maker of ZoomText magnification, and magnification with speech
• MacSpeech DictateUses the Legendary Dragon NaturallySpeaking speech recognition engine, works with other applications you have on your Mac. Won the Macworld Expo Best of Show 2008.
• Maryland Technology Assistance Program (MD TAP)
• Maryland Programs for Infants, Toddlers, and Preschoolers with Disabilities
• Missouri Assistive Technology Project
• Motor Assisted NARI Handicapped Rickshaw (MANHARA) Nimbkar Agricultural Research Institute (NARI) has developed a very low-priced motorized vehicle for physically handicapped persons. MANHARA is motor assisted handpowered vehicle. [India]
• National Assistive Technology Research Institute (NATRI) Assistive Technology Resources
• National Center for Assisted Living
• Nebraska Assistive Technology Project
• North Carolina Assistive Technology Project
• Ohio's Family Support Collaborative (FSC): Tools to Help Your Child - Assistive/Adaptive Technology
• Oklahoma Able Tech
• RehabTool.com a newsletter on Assistive Technology for people with disabilities, their families and caregivers, healthcare professionals and special educators
• REMAP provides one-off technical aids which help disabled people of all ages to enjoy a better lifestyle. Every aid is given free of charge to the user. Remap operates through a network of 1,500 volunteers. The professional engineers, technicians, and craftspeople - along with medical and paramedical staff from community services and hospitals - all belong to approximately 100 panels (groups) linked to regions across the UK, with Scotland and the Isle of Man operating separately. [United Kingdom]
• "Research Recommendations: Interagency Committee on Disability Research Stakeholders Meeting on Assistive Technology", Washington, DC, 26 June 2003. A paper by Scott Luebking, Technology Consultant, Disability Rights Education and Defense Fund (DREDF)
• Rhode Island Assistive Technology Access Project (ATAP)
• South Carolina Assistive Technology Project (SCATP)
• Technical Aid to the Disabled (TDAVIC) volunteer members design, construct or modify equipment for people with disabilities. This service is provided where no commercially available solution will meet their needs. [Australia]
• TechAccess of Rhode Island is the central information, resource, and demonstration site for the Assistive Technology Access Partnership (ATAP), the Rhode Island Tech Act grant.
• Tech Connections connecting people with assistive technology
• Telesensory low vision solutions: products for video magnification and speech output
• ThinkCycle is an academic, non-profit initiative engaged in identifying and addressing design challenges related to underserved communities and the environment. ThinkCycle seeks to create a culture of open-source design innovation, with a collaborative community of individuals and organizations around the world.
• Tongue Display Unit (TDU)
• Trace Research & Development Center
• TriTek Corp. — Computer Controlled Microscopes
• University Based Assistive Technology Sites
• USDA's TARGET Center ensures that all USDA employees have safe and equal access to electronic and information technology by assessing, educating, and advocating for the integration of assistive technology and worksite accommodations.
• Vermont Assistive Technology Project
• Virtual Assistive Technology Center
• VisionKey brings the latest in wearable eye-controlled communication technology to enable users with ALS, brainstem stroke, muscular dystrophy, CP, Locked-in-Syndrome, Quadriplegia, or traumatic brain injury to use eye movements for complete computer access and for augmentative communication. Available in English, French, and Spanish and runs on Macintosh and Windows platforms. Manufactured by H.K. EyeCan. [Canada]
• Washington Assistive Technology Act Program, serves Washington residents of all ages with disabilities of all types, their families, employers and employment service providers, educators, health care and social service providers, and others seeking information about assistive technology (AT) and accessible information technology.
• WebbIE Free specialized text browser developed by the University of Manchester. Available in English, French, and Spanish. [UK]
• Window-Eyes screen reader
• Workshop Solutions "is a place in space where engineers, technicians, inventors and workshop enthusiasts can display and share knowledge on the assistive devices they have built to better the lives of the disabled." [Canada]
• ZoomText® Screen magnification and combined screen reader/magnification software.

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Part 1: Accessible Travel - Asperger's Syndrome and Autism
Part 2: Assisted Living, Clothing, and Rehab Equipment Products - Assistive Technology
Part 3: Attention Deficit Disorder - Disability Etiquette
Part 4: Disability Organizations - Emergency Preparedness
Part 5: Employment - Klinefelter Syndrome
Part 6: Language - Medical Links
Part 7: Mental Health - Rett Syndrome
Part 8: Scoliosis - Stroke Treatment and Recovery
Part 9: Tay-Sachs Disease - William's Syndrome

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