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Resources, part 4

There are over 1,100 rare disorders according to the National Organization for Rare Disorders (NORD). We have limited this set of resources to the more common disorders and the ones with more public awareness. We also include items that have been submitted for the list by the A-SIG Discussion list members. If you find a link that is no longer active or has moved, please notify the Webmasters.

Part 1: Updated Sunday May 04 2008

Accessible Travel Adaptive Technology Aging Allergy and Asthma Alternative Medicine Alzheimer's Disease and Dementia Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease) Aphasia Architectural, Environmental, and Product Design Arthritis Asperger's Syndrome and Autism

Part 2: Updated Sunday May 04 2008

Assisted Living, Clothing, and Rehab Equipment Products Assistive Technology

Part 3: Updated Sunday May 04 2008

Attention Deficit Disorder Behavior and Social Interaction Blood Diseases and Disorders Book Lists Brain Injury Cancer Cerebral Palsy Chromosome 18 Syndrome Chronic Fatigue Syndrome Cognitive Disability Cornelia de Lange Syndrome Cystic Fibrosis Deep Vein Thrombosis Developmental Disabilities Diabetes Disability Etiquette

Part 4: Updated Sunday May 04 2008

Disability Organizations Disability Sites for Children and Families Disaster Resources Down Syndrome Drug/Alcohol Addiction Dwarfism Dyslexia Dystonia Education Emergency Preparedness

Part 5: Updated Sunday May 04 2008

Employment Epilepsy Ergonomics and Musculoskeletal Disorders Facial Difference Fetal Alcohol Syndrome Fibromyalgia Fragile X Syndrome Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy Health Care for Women Hearing Loss Heart Attack and Angina Huntington's Disease Hyperlexia Hypermobility, Ehlers-Danlos, and Marfan Syndrome Internet Accessibility / Usability Invisible Disabilities Klinefelter Syndrome

Part 6: Updated Sunday May 04 2008

Language Learning and Speaking Legal & Human Rights Resources Literacy: Reading and Print Disabilities Literature Lung Diseases Lupus Magazines and Periodicals Medical Links

Part 7: Updated Sunday February 24 2008

Mental Health Mucopolysaccharidoses & Mucolipidoses Multiple Sclerosis Muscular Dystrophy and Ataxia Obsessive-Compulsive Disorder Orthopaedic Information Pain Management Parkinson's Disease Performance Arts / Theater Pervasive Developmental Disorders Phobias Physical Impairment Polio Prader-Willi Syndrome Rehabilitation and Physical Therapy Restless Leg Syndrome Rett Syndrome

Part 8: Updated Sunday May 04 2008

Scoliosis Service Dogs and Therapy Animals Sight / Vision Loss Sjögren's Syndrome Sleep Disorders Spasmodic Torticollis / Dystonia Speech Spina Bifida Spinal Cord Injury Spine and Neck Pain Sports and Recreation Stress Stroke Treatment and Recovery

Part 9: Updated Thursday March 20 2008

Tay-Sachs Disease Technical Communication Thyroid Disorders Tourette Syndrome Traumatic Brain Injury Turner Syndrome Usability and Human Factors Vision Loss William's Syndrome

See also: Suggested Reading book lists.

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Disability Organizations

• Able Trust Florida Governor's Alliance for the Employment of Citizens with Disabilities
• Abilities! is a non-profit agency that is dedicated to empowering people with disabilities to be active, independent, and self sufficient participants in our society. Through education, training, research, leadership, and example, Abilities! seeks to provide the highest quality services and to influence national attitudes, policies, and legislation in ways that will lead to the greatest benefits for the people we serve.
• Accessify
• Action Without Borders Idealist.org [English, French, Spanish, and Russian]
• ADA Document Center
• ADA-Ohio
• Administration on Developmental Disabilities (ADD) U.S. Government organization responsible for implementation of the Developmental Disabilities Assistance and Bill of Rights Act of 2000, known as the DD Act. ADD, its staff and programs, are part of the Administration for Children and Families, of the U.S. Department of Health and Human Services.
• Agency for Persons with Disabilities (State of Florida) "The primary mission of the Agency is to support persons with developmental disabilities in living, learning and working, in all aspects of community life.
• Alliance for Technology Access
• American Alliance for Health, Physical Education, Recreation and Dance (AAHPERD)
• American Association of People with Disabilities (AAPD)
• American Council of the Blind
• American Foundation for the Blind (AFB)
• American Physical Therapy Association, Inc.
• Arizona Department of Security, Division of Developmental Disabilities
• Arizona Department of Security, Rehabilitation Services Administration
• Aspire turning disabilities into capabilities
• Assistive Technology: Loans, Acquisitions, Services, and Training, Inc. (AT:LAST, Inc.) a Maryland Assistive Technology Co-operative
• Association of University Centers on Disabilities promotes and supports the national network of university centers on disabilities, which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC).
• Be Independent
• Best Buddies dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment
• Boston IA Bringing Information Architecture and Internet Accessibility Together
• Canadian Centre on Disability Studies
• Center for Universal Design
• Council of Canadians with Disabilities in English and French [Canada]
• Courage Center empowers people with physical disabilities to reach for their full potential in every aspect of life.
• Danish Disability Council [Denmark]
• Dating services:
  • Datable, Inc.: a dating service with a heart located in Bethesda, Maryland
  • Disabled Dating through Differently Abled Winners Network (D.A.W.N.)
  • Disabled Dating World
  • Love Byrd
  • Special Singles Online
• Delta Society the human - animal health connection: service dogs, therapy animals
• Disabled in Action of Metropolitan New York
• Disabled People the merger of disability.gov.uk and the "disabled people" section of Directgov. Directgov offers disabled people information on a wide range of topics including financial support, home and housing, leisure and travel, as well as disability rights information. [United Kingdom]
• Disability Network
• Disability Services in Florida
• Easter Seals
• Easter Seals Project ACTION a project to improve access to public transportation for people with disabilities and to help transportation operators implement the ADA law's transportation provisions.
• Esmerel's Collection of Canadian Disability Sites
• Esmerel's Collection of Disability Organizations
• Esmerel's Collection of Disability Resources
• Esmerel's List of Lists of Disability Resources
• Great Lakes ADA & IT Center
• HealthWrights is a nonprofit organization committed to advancing the health, basic rights, social equality, and self-determination of disadvantaged persons and groups. We believe that health for all people is only possible in a global society where the guiding principles are sharing, mutual assistance, and respect for cultural and individual differences. [Mexico]
• Infinitec.org a joint effort of the United Cerebral Palsy Association of Greater Chicago and United Cerebral Palsy Associations, Inc., Washington D.C. The Mission of Infinitec is to advance independence and promote inclusive opportunities for children and adults with disabilities through technology. The Infinitec staff helps people with disabilities find and get access to information, technology services, training, assistive equipment and specialists by creating partnerships that maximize resources.
• International Classification of Functioning, Disability and Health (ICF)
• International Commission on Technology & Accessibility (ITCA) – a global promotion and implementation of more equitable and accessible environments, technology, and information.
• International Conference on Computers Helping People with Special Needs (ICCHP)
• International Day of People with a DisABILITY "Originally declared by the United Nations General Assembly in October 1992 as the International Day of Disabled Persons, the Australian event was renamed the International Day of People with a DisAbility by community representatives in 1997. It was felt that this new title placed a greater emphasis on the abilities and achievements of people living with disAbilities." [Australia]
• International Guild of Disabled Artists and Performers (IGODAP)
• International League of Associations for Rheumatology (ILAR)
• International Society for Augmentative and Alternative Communication (ISAAC)
• Learning Independence Through Computers (LINC) a computer resource center that provides opportunities for people with disabilities, their families, professionals, and members of the business community to explore adaptive technology, computer systems, software, and the Internet [Maryland]
• Legal & Human Rights Resources
• Maryland Association of Community Services (MACS) dedicated to strengthening agencies to better support people with developmental disabilities and their families in their own communities
• Maryland Department of Disabilities Administration (DDA) assures the full participation of individuals with developmental disabilities and their families in all aspects of community life
• Maryland Department of Human Resources (DHR) assists people in economic need, provides prevention services, and protects vulnerable children and adults
• Maryland Developmental Disabilities Council (DDC)
• Maryland Disability Resources Regional Resources Directory
• Maryland Division of Rehabilitation Services (DORS)
• Maryland State Resources a publication of the National Dissemination Center for Children with Disabilities
• Maryland Technology Assistance Program (MD TAP)
• Maryland Transit Administration Senior/Disability Services
• Medicare
• Ms. Wheelchair America Pageant
• National Art Exhibitions by the Mentally Ill (NAEMI) holds an annual nation wide search of psychiatric institutions to identify mentally disabled artists and give them the opportunity to exhibit their work, receive recognition, validation, vocational rehabilitation and self confidence and generate an income through the sale of their art work
• National Arts and Disability Center (NADC)
• National Association of Children's Hospitals advocacy (NACHRI)
• National Association on Alcohol, Drugs and Disability Inc. (NAADD)
• National Autistic Society (NAS) [United Kingdom]
• National Business & Disability Council (NBDC)
• National Captioning Institute
• National Center for Accessible Media (NCAM)
• National Council on Disability (NCD) an independent federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families
• National Disability Sports Alliance
• National Institute of Child Health and Human Development conducts and supports research on all stages of human development, from preconception to adulthood, to better understand the health of children, adults, families, and communities.
• National Institute on Deafness and Other Communication Disorders conducts and supports research and research training related to disease prevention and health promotion; addresses special biomedical and behavioral problems associated with people who have communication impairments or disorders; and supports efforts to create devices which substitute for lost and impaired sensory and communication function.
• National Institutes of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
  • NIAMS Patient Research Registries
• National Institutes of Health (NIH)
• National Institute of Neurological Disorders and Stroke (NINDS)
• National Institute on Disability and Rehabilitation Research (NIDRR)
  • NIDRR's Access to Disability Data
• National Organization for Rare Disorders (NORD)
• National Organization on Disability (NOD)
  • NOD Community Involvement: Emergency Preparedness
  • NOD information and resources
• National Pain Foundation (NPF)
• National Rehabilitation Information Center (NARIC)
• Nothing About Us Without Us: Developing Innovative Technologies For, By and With Disabled Persons by David Werner with the PROJIMO team and many friends [Mexico]
• Nothing About Us Without Us: Recognizing the Rights of People with Disabilities a UN Chronicle article
• Ohio's Family Support Collaborative (FSC)
• Physical Therapist Online
• PROJIMO is a community based rehabilitation and education project run by and for disabled people. Its main objective is to increase abilities and opportunities of disabled persons and their families and help raise the consciousness of non-disabled persons and school children to include a disabled person in the life of the community: to look at their strengths, not their weaknesses. The disabled rehab workers provide physical and occupational therapy, counsel families about how to assist (but not overprotect) their disabled child, teach self help skills, and make a wide variety of adaptive equipment. [Mexico]
• Rehabilitation Engineering Society of North America (RESNA)
• San Antonio, Texas, Disability Access Office
• Society for Applied Learning Technology
• TAASC The Adaptive Adventure Sports Coalition
• TASH supports the inclusion and full participation of children and adults with disabilities in all aspects of their communities as determined by personalized visions of quality of life
• The Arc advocates for the rights and full participation of all children and adults with intellectual and developmental disabilities. The Arc is a grassroots organization with 140,000 members who are affiliated through approximately 1,000 state and local chapters across the nation.
  • The Arc of Baltimore
  • The Arc of Maryland
• The Harris Group educates the public about issues affecting the disabled in the Washington, DC metropolitan area
• The League for People with Disabilities offers individuals the opportunity to gain independence, to increase self-sufficiency and to improve quality of life
• ThinkCycle is an academic, non-profit initiative engaged in identifying and addressing design challenges related to underserved communities and the environment. ThinkCycle seeks to create a culture of open-source design innovation, with a collaborative community of individuals and organizations around the world.
• TransCen, Inc. is a non-profit 501(c)3 organization dedicated to improving educational and employment outcomes for people with disabilities
• Untangling the Web
• U.S. Department of Education (ED): Office of Special Education and Rehabilitative Services (OSERS)
• U.S. Department of Education (ED): OSERS: National Institute on Disability and Rehabilitation Research (NIDRR)
• Volunteers for Medical Engineering
• Women with Disabilities
• World Congress and Exposition on Disabilities

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Disability Sites for Children and Families

• Accessible Games and Puzzles for People with Disabilities
• Ability Kids
• Administration for Children & Families is a federal agency funding state, territory, local, and tribal organizations to provide family assistance (welfare), child support, child care, Head Start, child welfare, and other programs relating to children and families.
• AbleNet products and solutions for teaching children with disabilities
• Association of Hole In The Wall Camps a network of nine camps (and growing) around the world provide a recreational and therapeutic camping experience for children with serious illnesses. Children from more than 27 countries and 34 states attend camp programs. Some sessions are specialized for children with like illnesses. Camps serve children from more than 30 different disease groups. All children attend the camps free of charge as a result of generous contributions from individuals, corporations, foundations, and other organizations. Hole in the Wall Camps are the dream of actor Paul Newman who started the first camp in 1988.
• Audio Games AudioGames.net is a site dedicated to audio games (games based on sound) and blind-accessible games.
• Camps and Recreations for Children with Special Needs
• Caring Communities respite care resources for families of children with disabilities in the Washington, DC metropolitan area (District of Columbia, Maryland, and Virginia)
• Check & Connect: A Model to Engage Students in School and Prevent Dropout provides information about current field studies to reduce dropout rates and increase school completion for youth with and without disabilities in grades K-12 in urban and suburban communities
• Congenital Heart Defects
• Congenital Heart Defects in Children Fact Sheet
• Connecting to Success: Mentoring Through Technology to Promote Student Achievement an electronic mentoring program, begun in 1999, designed to promote successful transition of youth with disabilities to adult life
• Council For Exceptional Children
• Diakon Adoption & Foster Care Services
• Enabling Devices
• Esmerel's Collection of Disability Sites for Children
• EuroPēds intense physical therapy for children and young adults with cerebral palsy and other neuromuscular disorders
• Exceptional Children's Assistance Center a North Carolina parent's center
• Family friendly fun ideas and family health resources to enhance the quality and enjoyment of family life for families with disabilities
• Family Village Waisman Center at the Univ. of Wisconsin; regional, disability-specific, and parent-to-parent discussions, and a message board for parents of children whose problems have yet to be diagnosed.
• Family League of Baltimore City Inc. [Maryland]
• Family Net comprehensive online resource for disability-related information and supports [Maryland]
• For Parents of Preemies
• Freedom Hills Therapeutic Riding Program [Maryland]
• From Children to Children (for Sign Writing Children and Teachers)
• Games and Puzzels [international list from Australia]
• HomeworkSpot a free homework information portal that features the very best reference and news information for K-12 students
• Internet Resources for Special Children (ISRC)
• Let's Play! Project looks to provide families with ways to play through the use of assistive technology. From the University of Buffalo funded by the US Department of Education, Early Education Programs for Children with Disabilities
• Maryland Programs for Infants, Toddlers, and Preschoolers with Disabilities
• Maryland Relay program "Kids Keeping in Touch" a telecommunications service helping children who are deaf, hard of hearing, deafblind or speech disabled to easily communicate through TTY (text telephone) with anyone using a standard phone
• Mothers with Attitude, "Humor and help for adoptive moms, special-needs moms, any old moms at all."
• National Association of Children's Hospitals and Related Information (NACHRI) and the National Association of Children's Hospitals (NACH)
• Ohio's Family Support Collaborative (FSC): Assistive Technology: Finding and Funding
• Parenting Special Needs
• Pediatric Cardiology Kansas University Medical Center
• Skill: National Bureau for Students With Disabilities is a national charity promoting opportunities for young people and adults with any kind of disability in post-16 education, training and employment across the UK. [United Kingdom]
• The Able Crew interactive site for children from the National Council for Support of Disability (NCSD) Issues
  • The Able Crew Activity Pages
• The Coordinating Center provides multiple services for individuals with complex medical needs and disabilities, their families and others who support them, as well as providers of services
• Toys & Playtime Tips for Children with Special Needs Fisher-Price® has developed a partnership with experts from the Let's Play! Project, a federally funded program that supports family play experiences and activities for children with special needs.
• Toys for Children with Disabilities
• University Center for Excellence in Developmental Disabilities (UCEDD), Education, Research, and Service at the University of Southern California Childrens Hospital Los Angeles (USC UCEDD at CHLA) is a nationally recognized leader in developing and supporting quality services and systems for individuals with, or at risk for, behavioral, developmental and or special health care needs and their families. They have three centers: Center for Disability Studies and Community Inclusion, Center for Child/Family/Health Initiatives and Leadership Development (CHILD), and the Center for Community Mental Health (CMH).
• Wheelrace (in Danish) an educational game for school children aged 11-14 to teach kids what life is like when you are bound in a wheelchair. Wheelrace is made by Kongo Interactive and Guppyworks. [Denmark]
• Woodbine House Books for Special Needs for children, parents, teachers, and professionals

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Disaster Resources

• Aid & Resources
  • Against the Wind: Protecting Your Home From Hurricane Wind Damage is a FEMA brochure with information provided by the American Red Cross, The Home Depot, Georgia Emergency Management Agency, and the National Association of Home Builders of the United States (228 K )
  • American Red Cross
  • American Red Cross Hurricane Season Get Help Resources
  • America's Second Harvest: The Nation's Food Bank Network
  • Doctors Without Borders/Médecins Sans Frontières (MSF) [U.S. site]
  • Federal Emergency Management Agency (FEMA)
  • FEMA for Kids
  • USA.gov in Spanish: Desastres y emergencias (Disasters and Emergencies)
  • Hazard Information Learn About the Types of Disasters: Earthquakes, Extreme Heat, Fires, Floods, Hazardous Materials, Hurricanes, Landslides, Multi-Hazard, Nuclear, Terrorism, Thunderstorms, Tornadoes, Tsunamis, Volcanoes, Wildfires, Winter Storms
  • International Center for Missing & Exploited Children
  • International Red Cross
  • Médecins Sans Frontières (MSF) [Geneva, Switzerland, headquarters site with links to the MSF in other countries]
  • Missing Children Resources U.S. and international organizations
  • Missing Persons
  • Missing Pets Network sponsored by the USDA Office of Animal Care
  • NAACP Disaster Relief Fund
  • National Center for Missing Adults
  • National Center for Missing & Exploited Children
  • Pet Finder's Animal Welfare Disaster / Emergency Response Resources
  • Ready America from the U.S. Department of Homeland Security
  • Tornado Preparedness
  • U.S. Army Survival Manual FM 21-76
  • U.S. States Resources:
    • Hurricane Katrina Louisiana Disability Information Resource
    • Emergency Preparedness for People with Disabilities in Ohio
• Alerts
  • Aches and Pains Forecast
  • Active weather warnings tornados, hurricanes, floods, and severe storms
  • GOES Project Science Hot Stuff Scrapbook collection of past color images; satellite photos and movies of hurricanes and tornados
  • GOES Project Science — get the latest real-time color image of hurricanes and tornados
  • Hurricane Central
  • NOAA Weather Radio
  • NOAA Weather Radio for Deaf and Hard of Hearing
• Disease
  • Centers for Disease Control traveler's health information vaccination requirements and cruise ship inspections
• Earthquake
  • Earthquake monitor map real-time seismic monitor
  • Hourly Earthquake Report
  • It's the end of the world, as we know it catastrophes and disaster links
  • Java Earthquake Map of Southern California
  • Recent earthquakes maps of quakes in the last 14 days
• Fires
  • California fires
  • Global Fire Monitoring
• Volcanoes
  • Volcanoes
  • GOES Project Volcano Watch QT and MPEG animations
  • Volcano Watch see the latest on the world's volcano eruptions

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Down Syndrome

• Canadian Down Syndrome Society
• C.H.A.N.G.E.S. (Children and Adults for Normalization, Growth, Equality and Socialization) [Canada]
• Down Syndrome Health Issues
• Down Syndrome Organizations from Argentina, Australia, Bahrain, Brazil, Canada, Chile, France, Iceland, Israel, Italy, Malta, Mexico,The Netherlands, Nigeria, New Zealand, The Philippines, South Africa, United Kindom, United States
• Down Syndrome Quarterly
• Down's Heart Group (DHG) [UK]
• National Down Syndrome Congress
• National Down Syndrome Society
• Down Syndrome WWW Page
• Esmerel's Down Syndrome Resources

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Drug/Alcohol Addiction

• Dual Diagnosis
• Drug Rehab Information is a reference site on the topic of drug and alcohol rehab: types of rehab, drug rehab centers, illegal drug addiction, and prescription drug addiction
• National Association on Alcohol, Drugs and Disability Inc., (NAADD)

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Dwarfism

• Achondroplasia UK provides support, health resources, and advise about short-limb dwarfism. [United Kingdom]
• Dwarf Athletic Association of America (DAAA) aims to develop, promote and provide quality amateur level athletic opportunities for dwarf athletes in the United States regardless of their level of skills. [U.S.A.]
• Little People of America (LPA), founded by Billy Barty, is a nonprofit organization that provides support and information to people of short stature and their families. [U.S.A.]
• Little People of British Columbia Society for Short Stature Awareness a nonprofit organization for children and adults with a growth disorder or dwarfism. [Canada]
• Little People of Ireland (LPI) is the national organisation for people with restricted growth in Ireland, providing fundamental information and support to improve the quality of life for people of restricted growth, and their families. [Ireland]
• Little People of Ontario provides medical research, school accommodation issues, where to shop for special products, and important links. You will also find information about events designed to bring Little People and their families together. [Canada]
• Little People's Research Fund (LPRF) is a health organization that supports research for the special medical needs of people affected with skeletal dysplasia. The organization funds research on the orthopedic disabilities associated with dwarfism. [U.S.A.]
• Primordial Dwarfism is dedicated to educating and supporting families affected by primordial dwarfism.
• Short Persons Support provides health resources, reference material, and news about dwarfism.
• The Billy Barty Foundation (BBF) primary objective is to eliminate attitudinal barriers, myths and false negative stereotypes of Little People by providing society examples of achievement and inspiration, and for the dissemination of information to the general public at large as well as to Little People and their families. The Foundation strives to assist people of short stature to live more independently and productively, and is committed to develop unique and necessary accomodations and services. The BBF has a scholarship fund to help promising college students who have a medical form of dwarfism. [U.S.A.]
• Short Statured People of Australia (SSPA) provides information about the SSPA and educates the community about short-statured people (dwarfs). [Australia]

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Dyslexia

• British Dyslexia Association
• Dyslexia Teacher
• Famous People with the Gift of Dyslexia
• International Dyslexia Association

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Dystonia

See Spasmodic Torticollis / Dystonia.

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Education

• Accessibility and E-Learning Useful links from the CETIS-TechDis Accessibility SIG
• AbleNet products and solutions for teaching children with disabilities
• accesselearning A free, online 10-module tutorial that offers information, instructional techniques, and practice labs on how to make the most common needs in distance education accessible for individuals with disabilities, and enhance the usability of online materials for all students.
• All Kinds of Minds understanding differences in learning
• Archimedes Project studies barriers to accessing and using information, computers, and information appliances and identifies and designs innovative solutions, including accessors, that advance universal access to and use of information and control of one's environment. Stanford University
• Bentley College Design and Usability Center Accessibility designs for and conducts research with persons who have cognitive or physical disabilities, use assistive technologies, are aged, or who have low literacy skills.
• Center for American Indian Rehabilitation (CAIR) San Diego State University
• Check & Connect: A Model to Engage Students in School and Prevent Dropout provides information about current field studies to reduce dropout rates and increase school completion for youth with and without disabilities in grades K-12 in urban and suburban communities
• Closing the Gap computer technology in education and rehabilitation
• College: You Can DO IT! College students with disabilities and staff share advice for success in college. University of Washington
• Commission on Rehabilitation Counselor Certification (CRCC) for the U.S. and Canada
• Computer Accommodations Program (CAP) a program to assist university students, staff, and faculty with disabilities in accessing computers and information through the use of adaptive technology. University of Minnesota
• Computer / Electronic Accommodations Program (CAP) CAP provides assistive technology and services to people with disabilities; Federal managers; supervisors; IT professionals; and support to returning wounded service members in their recovery, rehabilitation, transition and employment phases.
• Connecting to Success: Mentoring Through Technology to Promote Student Achievement an electronic mentoring program, begun in 1999, designed to promote successful transition of youth with disabilities to adult life
• CSUN Center On Disabilities California State University Northridge
• Department of Special Education of the College of Education University of Maryland College Park
• Disability History Museum
• DO-IT (Disabilities, Opportunities, Internetworking and Technology) TV Series People with disabilities suggest how educators, adapted environments, and technology can ensure equal access to education and employment for individuals with disabilities. University of Washington
• DO-IT Faculty Room DO-IT video presentations from the University of Washington
• Fetal Alcohol Syndrome / Fetal Alcohol Effects (FAS/FAE) Legal Issues Resource Center University of Washington School of Law together with the Fetal Alcohol And Drug Unit, Department of Psychiatry and Behavioral Sciences, University of Washington School of Medicine
• Helen Hamlyn Research Centre Centre for inclusive design. Royal College of Art postgraduate art and design. [United Kingdom]
• IMS Accessibility Learner Information Package (LIP)
• Independent Living Institute full-text virtual library on Independent Living and related subjects [Sweden]
• International Center for Disability Information (ICDI) West Virginia University
• International Webmasters Association online Web training programs
• Institute on Community Integration (UCEDD), University of Minnesota. The Institute on Community Integration is a University Center for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) whose mission is to improve the quality and community orientation of professional services and social supports available to individuals with disabilities and their families.
• Learning differently group to support parents of gifted kids
• National Association of State Directors of Special Education (NASDSE) provides support to all states and territories in the delivery of quality education to children and youth with disabilities.
• National Center on Disability and Access to Education (NCDAE) monitors and promotes electronically-mediated distance education policies and practices that enhance the lives of people with disabilities and their families.
• National Center on Secondary Education and Transition (NCSET) "Creating opportunities for youth with disabilities to achieve successful futures"
• NCSET Technical Assistance (TA) Communities of Practice TA providers who share their expertise, issues, and solutions to improve outcomes for children and youth with disabilities and their families
• National Center for the Study of Postsecondary Educational Supports (NCSPES), Center on Disability Studies, University of Hawaii at Manoa NCSPES is a Rehabilitation Research & Training Center (RRTC) within the Center on Disability Studies (UCEDD) at the University of Hawaii at Manoa.
• National Center on Educational Outcomes (NCEO) researches, provides technical assistance, and engages in extensive dissemination activities on the participation of youth with disabilities in national, state, and district assessments, standards-setting efforts, and graduation requirements
• National Collaborative on Workforce and Disability/Youth (NCWD/Youth) assists state and local workforce development systems to better serve youth with disabilities
• National Educational Association of Disabled Students in English and French [Canada]
• National Center for the Dissemination of Disability Research
• National Center for Learning Disabilities (NCLD) Anne Ford Scholarship. The Anne Ford Scholarship is a $10,000 award given to a high school senior with an identified learning disability (LD) who is pursuing an undergraduate degree.
• National Center on Disability and Journalism (NCDJ)
• National Rehabilitation Leadership Institute (NRLI) San Diego State University
• Office of Special Education Programs (OSEP), U.S. Department of Education, is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts.
• Open University distance education Learner's Guide Services for Disabled Students resources for students, including good guidance on thinking about their needs, legal advice, course materials in alternate formats, and more. [United Kingdom]
• PACER Center (Parent Advocacy Coalition for Educational Rights) is a nonprofit statewide parenting center located in Minnesota. The majority of PACER's staff and board members are parents of children with disabilities.
• Parent Educational Advocacy Training Center (PEATC) assists the families of children with disabilities through education, information and training
• Penn State Hershey College of Medicine Rehabilitation Penn State Rehabilitation is committed to providing the region with accessible, high quality and efficient care in a professional and compassionate environment.
• Rapid LMS - free service for qualified Vignettes For Training member organizations. Rapid LMS enables rapid e-Learning content and systems development.
• Rehabilitation Sciences and Technology University of Pittsburg, School of Health and Rehabilitation Sciences
• Resources for Faculty Teaching Students with Disabilities Brown University
• Sociology Government Documents Library University of Maryland College Park
• The Access Group provides customized training and learning materials and speeches
• The National Center on Education, Disability and Juvenile Justice University of Maryland College Park
• Temple University Institute on Disabilities, Philadephia, PA
• TransCen, Inc. is a non-profit 501(c)3 organization dedicated to improving educational and employment outcomes for people with disabilities
• Universal Design Education Online
• University of Leeds Disability Studies Centre [United Kingdom]
• University of Maryland School of Medicine Department of Orthopaedics undergraduate and graduate studies
• University of Maryland School of Medicine Physical Therapy & Rehabilitation Science develops physical therapist practitioners and scholars to restore physical function and performance, prevent physical injury and disease and promote physical wellness.
• U.S. Department of Education (ED): Office of Special Education and Rehabilitative Services (OSERS)
• U.S. Department of Education (ED): OSERS: National Institute on Disability and Rehabilitation Research (NIDRR)

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Emergency Preparedness

• Access Board Emergency Evacuation Procedures is the Access Board's current emergency evacuation plan, which it is making publicly available, along with information on how it was developed, as a resource for other organizations who may implement or update their own plans.
• Access Board's Resources on Emergency Evacuation and Disaster PreparednessThe Access Board develops and maintains accessibility requirements for the built environment, transit vehicles, telecommunications equipment, and for electronic and information technology under several different laws, including the Americans with Disabilities Act (ADA). The Board's guidelines for facilities address means of egress that are accessible to persons with disabilities. Presented here is an overview of these design requirements. Also included are links to information developed by other organizations on evacuation planning and disaster preparedness.
• DisabilityInfo.gov (includes many useful links)
• Department of Homeland Security
• Define. Plan. Train. SPECIAL REPORT: 10 Considerations to Disaster Preparedness and Recovery, by Jana J. Madsen, Linda K. Monroe, Regina Raiford, and Clara M.W. Vangen, November 2001
• Federal Emergency Management Agency
• National Fire Protection Association (NFPA) Issues Emergency Evacuation Planning Guide for People with Disabilities, 29 March 2007
• National Organization on Disability/Emergency Preparedness Initiative
• NFPA's The Emergency Evacuation Planning Guide for People with Disabilities
  • Planning guide in PDF format (1 MB)
  • Planning guide in Word format (1.9 MB)
  • Planning Checklist in Word format (1 MB)

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Part 1: Accessible Travel - Asperger's Syndrome and Autism
Part 2: Assisted Living, Clothing, and Rehab Equipment Products - Assistive Technology
Part 3: Attention Deficit Disorder - Disability Etiquette
Part 4: Disability Organizations - Emergency Preparedness
Part 5: Employment - Klinefelter Syndrome
Part 6: Language - Medical Links
Part 7: Mental Health - Rett Syndrome
Part 8: Scoliosis - Stroke Treatment and Recovery
Part 9: Tay-Sachs Disease - William's Syndrome

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